To say I was a bit of a surprise to my mum and dad was a bit of an understatement!

My Story

Mum was happily pregnant enjoying time with my 14 month brother thinking she had another two months to go. But, one night, what started off as mum feeling unwell turned into contractions and after a mercy call to my grandparents and a white knuckle ride to hospital, was cheeky me…wanting to come out early! 

At first all was OK. The Doctors told Mum & Dad my APGAR scores were great and somehow we adjusted to our new life in the Special Care Baby Unit, although it was really, really tough being apart. A week after I was born, though, the Doctors decided to share the news with my Mum (who was alone at the time and totally unprepared) that the bleed on the brain I’d had (which they hadn’t told my parents anything about) had resulted in PVL or PeriVentricular Leucomalacia which would likely result in “movement” issues. 

Fast forward two years and after major physical milestones were missed, a Neurologist confirmed that I had Spastic Cerebral Palsy. 

I think this is the part where normally you have to say what you can and can’t do which seems a bit undignified because, thanks to a small but really tight knit bunch of people, the first thing I’d like you to notice about me is my smile and not my chair.

 So, let’s start with the good stuff: get me in a pool and I’ll kick my legs like my life depended upon it. Show me chocolate and suddenly I can move with lightning speed pulling myself across the floor with all the grace of a synchronised swimmer. Let me join in with PE at school and I’ll kneel up guffawing with laughter as my friends jump away. Strap me up on my trike and watch me go! 

But without my Mum and Dad I can’t get up or downstairs, get dressed, stand up or walk. I can’t wriggle my toes, I can’t stretch my hamstrings more than a 40 degree angle and it and the pain is getting a whole lot worse. 

When you can’t walk, you don’t weight bear through your hips and pushing the ball joint tightly into the socket so your hips dislocate (my hips are dislocated by 30 and 40%). Your tight muscles don’t end up growing at the same rate as your bones so you end up with shortened muscles, deformities and pain. 

My parents want to do everything they can to help me and they’re hoping you can help too.

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